It’s been Five days since my last workout (Ironman 70.3) and I’m already feeling gross from eating way too much and not being active. I’ll try a work out later today.
72 days left
I met with my Boss and his Boss and they were both extremely understanding and encouraging when I told them about HDGC and the upcoming surgery. It appears my work is amazing about these types of things. It was a unique conversation. I’m like, “Hey – they think I might have cancer, but they can’t tell, so instead, they want to remove my stomach so they know for sure”….. However, like I said, my company has been amazing about it.
My Endoscopy is scheduled for 11/22/2017.
My mom’s Endoscopy and Biopsies came back “clear”, however they said they noticed an irritation on her stomach which is most likely caused by stress? :\. That makes me a bit nervous. She is working to schedule a surgery date after the holidays. She has identified a good doctor in St. Louis (information below). I’m extremely thankful for NoStomachForCancer.org as they helped my mom and I find doctors/surgeons with experience in HDGC/CDH1 Gene mutation patients. Here is a note from Dr. Fields:
“We have an active program in prophylactic gastrectomy for CDH1 patients. I would be happy to see her and discuss and I have performed many of these surgeries. Also, we see many patients from Springfield and can assist with logistics of travel and pre/post-op care.
If you want to discuss with her and let me know if she wants to come up here. We will then contact her and her current providers to review records so we can get any additional testing done here when she sees me to minimize visits.”
Ryan Fields, M.D., F.A.C.S.
Associate Professor of Hepatobiliary, Pancreatic,
Gastrointestinal, and Oncologic Surgery
Associate Program Director, General Surgery Residency Program
Director, Resident Research
Department of Surgery
Barnes-Jewish Hospital
Washington University School of Medicine
660 South Euclid Avenue
Campus Box 8109
St. Louis, Missouri 63110