This weekend I traveled to the chilly Madison WI to help host a fundraiser for a very important initiate called Save Our Stomachs. Please click on the link to learn more. The short of it – this is an incredible opportunity to create an endowment fund and fund important CDH1 Gene Mutation Related research in perpetuity!
This picture is a group of “stomachless warriors” that are so special to me! We had a blast and raised a lot of money. Totals are still being worked but check the status here: https://saveourstomachs.org/donate/
I’m thrilled to announce that I have registered for the IRONMAN Chattanooga in September 2023.
You might already know, but an IRONMAN Triathlon is a 2.4 Mile Swim, 116 Mile bike ride, 26.2 Mile Run. Totaling in 144.6 miles. I’m doing this race to keep the focus on doing hard things without a stomach and hopefully inspire others to do the same. A growth mindset is healthy mindset.
This will be my first full IRONMAN and preparation is already underway.
I’ll try and post more here or somewhere. Stay tuned!
Follow along here: https://www.ironman.com/im-chattanooga
Additionally – I’m looking forward to some exciting initiatives and goals for the future. I’m still planning and working through everything but hope to formally announce something in the next few months and be more active on updating this blog.
It’s only been 22 Months or so. We survived a pandemic, I have a new job, our family welcomed a new dog, and life seems busier than ever. Sorry for the lack of posting but I guess I’m here to say – things are nearly back to normal. I forget I don’t have a stomach most days. I’m still active and plan on running a half marathon with my wife next month. If you’re reading this – keep fighting. No matter what your battling – Keep Fighting.
It’s been 2 years and six days since my total gastrectomy
due to CDH1 gene mutation and Hereditary Diffused Gastric Cancer Syndrome. During
the first few months after surgery, I would have thought I would be finishing the
Charleston Marathon in 4:11:45 in two years.
It was a warm day (low 70’s) and the race was hard. Knee pain started at mile 4, and only got worse. By mile 20, and after drinking over 115 ounces of liquids to keep from cramping, my legs were extremely sore and tight. I felt worse when I walked through the aid stations, so I picked up the pace and just suffered through the finish line. My goal was to finish under 4:30:00 so I was thrilled!
I went by a pop-up IV place and got a bag of fluid after the
race. It didn’t help too much as I had a headache for around 48 hours following
the race. I suspect due to dehydration. My legs are super sore, and the mental
fog is intense. Recovering from the marathon is much more involved than I
thought. With all the pain and difficulty, it was worth it.
I have no idea if my method will work for others, but I did
a lot of things differently:
3 runs a week. Short, internals one day. Tempo runs the other day. Then, lastly, a long and slow run on the weekends. I choose this unorthodox approach because I would be very sore after my long runs and I needed extra rest to recover. I forget where I found this plan but I had to edit it to 3 days and make some changes. I also didn’t follow it 100%. *Disclosure: I didn’t make it myself.
I took a 51 oz water backpack with me on all my long training runs and decided to use it for the race as well. On top of that, I had two 16 oz bottles on me that had 1.5 scoops of Hammer Nutrition – Perpeturm with a Nuun electrolyte tablet in each bottle. After I drank those, I added another electrolyte tablet in each bottle, with two GU Tri-Berry Gel’s and filled with water. Finally, after all of those, I had one last Gel with water to finish the race. PLUS, I would sip a cup of water at each aid station. Perhaps this is way too much, but I didn’t cramp, and it was a hot day so I consider it a victory to me.
The marathon was a big test for me. I’m not sure what I will
do next but I think I’ll take a break from the long races for a bit. They are a
big commitment and I’m looking forward to relaxing with the family more than racing
Join me Saturday, January 11th, for the Charleston Marathon. This will be my first marathon without a stomach. Training has been interesting and I’m currently battling a cold. I’m excited to give it my best and encourage you to follow along.
Marathon training is going well. It’s been painful, but it’s going well.
I seem to be sorer than last time I trained for a Marathon. But, a lot has changed since last time too.
I ran my first marathon in 2016. My knee became sore during the last month of training and I had no idea how to plan for nutrition on the marathon. I encountered a hamstring cramp at mile 20 of 26.2 and that greatly impacted my time and overall enjoyment. I had to walk/jog for the last six miles. It was a great learning experience and I was thankful I finished.
The marathon I’m going to run on January 11th, in Charleston SC, will be a much different experience. Here is what’s changed:
I’m about 25-30 lbs lighter
I don’t have a stomach.
My nutrition plan is much more involved
Carry about 82 ounces of water/Gatorade with me so I can drink as often as I like
Mix an electrolyte tablet with every 16 ounces of Gatorade and also mix in a Tri-Berry GU Gel for every 45 minutes of running
My legs are extremely sore after every long run. Like, barely can walk sore.
I’m only training 3 days a week, rather than 5. (Short run, mid-run, and long-run) -> This is certainly untested, but I created the plan after realizing I couldn’t take the beating of running 5 days a week. I was far too sore and tired.
I lose around 3-4 pounds on long runs. I still don’t understand the math on this one. I’m drinking of 90 oz of fluids and I still come back 3-4 lbs lighter.
Way more tired after workouts. Might be due to the hydration mentioned above. It’s hard to describe. It’s beyond tired. It’s like mental fog. I counter it with many shots of espresso to survive the remainder of the day.
Now that I have reached 18 miles, I feel great about finishing the race. Only a few more weeks to build, then I’ll taper before race day. Thanks for following along! You can mark yourself interested/going the support event via Facebook where I’ll continue to add content and updates. You can join in posting how much you will run/jog/walk on race day to support No Stomach For Cancer awareness!
You can make a difference and help me raise money for important Stomach Cancer Research during Stomach Cancer Awareness Month!
A fellow stomach cancer survivor, and stomachless friend, Camden Linstead has challenged me to raise money and race him in the Charleston Marathon on January 11, 2019. Show your support by donating $26.20 (number of miles we will run in the race) or more to one of our campaigns. All donations are tax-deductible and go to No Stomach For Cancer. Stay tuned for training updates as I’m behind schedule.
I know, I know. 2,500 ft elevation – who cares? Considering I have done almost all my training in zero elevation in Charleston, SC, it was great to get a bit of elevation into the mix without completely failing. I was impressed the added elevation didn’t hurt my performance too much. I stopped a few times for water breaks and I ran through town a bit so I had to stop for cars. That made my time a bit slower overall.
If you visit Tucson, AZ and want to run/bike – I highly recommend visiting “The Loop”. It’s beautiful, paved, clean, and safe. Pictures below!